RYV! Launch Agenda & Materials
6-7 minute read
This session took place Aug. 12, 2020 2:00 - 3:00 pm CST
Recording
In this session, we presented CTD's current major policy priorities and asked participants to discuss their own, particularly, how the pandemic has affect their priorities. This recording does not include the breakout sessions. The first part of Dennis' comments is in gallery mode, it will switch to speaker view!
Run time: 25:16
Full transcript (.rtf file, will prompt you to download in new window)
Participant feedback
Poll #1: Your policy priorities
from 42 total responding
- Community Attendant Workforce 71% (30)
- Dental Care for Adults 62% (26)
- Voting 62% (26)
- Medical Cannabis 45% (19)
- Special Education 62% (26)
- State Budget 55% (23)
- Something else 26% (11)
- Inadequate services for the growing number of seniors experiencing vision loss.
- NFB is trying to have the access technology program so people can afford their specialized technology.
- Medicaid Waiting List and how to be able to reduce it. Also on the ID population for post secondary education, employment and independent living.
Poll #2: How did this go?
from 35 total responding
- Great! 86% (30)
- OK, I would have done somethings differently 20% (7)
- I didn't like this 0% (thanks, y'all!)
Highlights and take-aways from breakout discussions
Prompt: How has the pandemic affected your policy priorities?
- My break-out group had a major concern regarding the impact of the COVID pandemic on health care providers and personal care attendants being afraid of contracting or transmitting the virus. Also some folks with disabilities fearful of catching the virus from PCA's are denying themselves needed services. Members were also concerned about risking their health by voting in person at polling locations.
- I believe that the pandemic has affected individuals ability to vote independently, ability to successfully care for or visit their love ones in Nursing homes, and I really believe there is a need for adults with Medicaid to have proper dental care. Attendent Care providers do not make enough money for the job they are required to do.
- cool people. like minded.
- interesting to hear different persepctives
- People with IDD are experenicing isolation at alarming rates
- very nice to talk to others about issues
- priorities- attendant care, dentists, voting
- seemed like everyone agreed so I think this will be a great session. I look forward to helping, please let me know how I can help
- impact of isolation, need creative solutions.
- We chatted about social isolation, affordable tech for everyone, and critical importance of attendant care and employment
- enjoyed discussing COVID and Voting. great to chat with Chase Bearden and look forward to work with voting issues
- Thank you for everything, we can all work together for the better, It can happen.
- access to technology was something that our group wants to make sure CTD adds to their radar
- concern about rationing care, quality of life determinations
- although there were a couple glitches; I enjoyed learning what the other people in my breakout session had to say.
- Consider others and their issusues
- everybody experiencing diffferent but similar challenges
- The system was difficult to navigate but fell apart with COID and continues to be impossible to get help or support
- our group takeaway was that during this pandemic biases that have been hidden are surfacing. The view is that everyone is in personal survival mode leaving those most in need alone. it is more important than ever we advocates make our voices heard.
- I agree- attendant care, dental and voting
- all these issues can have to do with people'sd overall health--even voting
- Our group opened my eyes to voting and suchool Issues we had not thought of. Exactly the type of discussions we needed
- great meeting! enjoyed meeting everyone.
- need to work on wages and benefits but to give hope I went from 14 to 30 hours but still 9/hr and medical cannabis
- attendant services are struggling even more with COVID. we definitely need to make our voices heard on this and the other issues mentioned
Resources & other things to share
- www.nfb.org, The national organization for the federation of the blind. www.nfbtx.org: The state affiliate president is Norma Crosby her e-mail is ncrosby@nfbtx.org tell: (281) 968-7733. We have NFB knewsline and several divisions for networking for anyone dealing with vision loss. The nfb has several zoom meet ups to discuss issues related to vision loss along with just about everything else. The NFB is currently sueing the state of texas over voting rights violations. see: https://www.nfb.org/about-us/press-room/lawsuit-alleges-paper-vote-mail-ballots-keep-blind-texans-votingNote. Texas Deaf-Blind Equipment Distribution for anyone who has lost both sight and hearing: http://www.icanconnect.org/how-to-apply/texas
Agenda & graphics
times are very approximate
1:50 Zoom Room opens for new Zoom users to check their tech, get oriented
2:00 Tech Intro: Some accessibility notes, review of features we'll be using (all participants enter room muted, with video off, please stay muted until we go into breakouts)
2:05 Welcome: Who is CTD, What is Raise Your Voice!
2:10 Our 2021 Policy Priorities
The following 3 graphics will be used during this section
Community attendants: erosion of hourly wages since 1968
Community attendants: other options for work
Adult dental care: Building on past success with a network of passionate self-advocates and professional advocates
2:20 Zoom Poll: Your Policy Priorities
2:25 Your Voice: guided conversations in breakout rooms (groups of 4-6): How has COVID impacted these issues for you or highlighted new challenges/ concerns?
2:50 Return to main room, mute yourself, and report highlight via chat
2:55 Zoom Poll: Your initial thoughts
3:00 Wrap up and next steps
Note that live tech support will be available before and during the session. Use chat to ask for help, and our Hogg Policy Fellow Jenn and volunteer Major will be there. If chat is not an option for you, they'll also be watching info@txdisabilities.org throughout the session.
- Round 1: Each person respond to the question, just from the top of your head, (about 1 min per person)
- Round 2: Each person responds to the question, having heard from others. This might be responding to something someone else said, made you think of something else, etc. (about 1 min per person)
- Round 3: Open discussion, follow some tangents, explore what’s coming up (about 8 min total)
- Round 4: Each person gives a highlight or take away from the conversation. (about 1 min per person)
Thank you...
to all who joined us, and shared your policy concerns, as well as guided us on how to do these sessions better next time. We hope to see you in an upcoming session! Also thanks to Jenn and Major for keeping things running as smoothly as possible, and to our sponsors!
